A Community Advisory Panel (CAP) Participant is a designated representative from the PHS Biobank and/or the All of Us Research Program providing input into all aspects of these initiatives and organizational processes, and advocating for enrollee and potential enrollee needs from a broad perspective.
- Attends meetings of designated committee(s).
- Reviews any/all materials for meetings beforehand.
- Offers input and feedback on committee areas of focus and agenda items from an enrollee and/or family perspective.
- Participates in work groups or projects generated by the CAP, as needed and appropriate.
- Represents the CAP positively through service on the committee and at events.
- Reports back to the CAP on the activities of the designated committee, as appropriate, and uses knowledge gained to help shape CAP objectives and initiatives.
- Member of the PHS Biobank or the All of Us Research Program.
- Ability to speak to personal experience in a way that informs committee work and outcomes.
- Ability to advocate effectively for the needs and priorities of staff, patients and families, as appropriate.
- Capacity to read and understand materials necessary for the committee’s work.
- Comfort with speaking in front of a potentially large, diverse leadership audience.
- Aptitude for active listening.
- Ability to respect and uphold confidentiality of meeting discussions.
- Availability to attend scheduled recurring meetings.
- Review of the Community Advisors Program position description.
- Meeting with the Committee Chair, the principal investigators to review:
- Committee purpose and function
- Expectations of committee members
- Relevant reports and data
- Term of service with the committee
- Benefits of participation
- Review of the organization’s confidentiality policy and its requirements.
- Review of prior minutes and exhibits to allow for deeper understanding of the committee’s work, as relevant.
- Successful completion of orientation to the committee.